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Cerebral Palsy Organization

Epilepsy Foundation
4351 Garden City Drive
Suite 500
Landover, MD 20785-7223
postmaster@efa.org
http://www.epilepsyfoundation.org
Tel: 301-459-3700 800-EFA-1000 (332-1000)
Fax: 301-577-2684

 

March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
askus@marchofdimes.com
http://www.marchofdimes.com
Tel: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203

 

Easter Seals
230 West Monroe Street
Suite 1800
Chicago, IL 60606-4802
info@easter-seals.org
http://www.easter-seals.org
Tel: 312-726-6200 800-221-6827
Fax: 312-726-1494

 

United Cerebral Palsy (UCP)
1600 L Street, NW
Suite 700
Washington, DC 20036
national@ucp.org
http://www.ucp.org
Tel: 202-776-0406 800-USA-5UCP (872-5827)
Fax: 202-776-0414

 

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Children’s Neurobiological Solutions (CNS) Foundation
1726 Franceschi Road
Santa Barbara, CA 93103
fia@cnsfoundation.org
http://www.cnsfoundation.org
Tel: 866-CNS-5580 (267-5580) 805-965-8838

 

Children’s Hemiplegia and Stroke Assocn. (CHASA)
4101 West Green Oaks Blvd., Ste. 305
PMB 149
Arlington, TX 76016
info437@chasa.org
http://www.chasa.org
Tel: 817-492-4325

 

Independent Living Research Utilization Project (ILRU) The Institute for Rehabilitation and Research
2323 South Sheppard, Suite 1000
Houston, TX 77019
(713) 520-0232; (713) 520-5136 (TT)
E-mail: ilru@bcm.tmc.edu
Web address: http://www.bcm.tmc.edu/ilru

 

National Rehabilitation Information Center (NARIC)
8455 Colesville Road
Suite 935
Silver Spring, MD 20910-3319
(301) 588-9284 (TT/Voice); (800) 346-2742
Web address: http://www.naric.com/

 

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Resources:
Cerebral Palsy: Hope Through Research: Cerebral palsy information booklet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).

NINDS Spasticity Information Page: Spasticity information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.

Classification and Definition of Disorders causing Hypertonia in Childhood: Consensus report of a meeting on hypertonia in childhood, April 22-24, 2001.

NICHCY State Resources Sheets list organizations in the state addressing cerebral palsy, assistive technology, and other disability-related issues and concerns.

 

Books:

Geralis, E. (1991). Children with Cerebral Palsy, A Parent’s Guide. Rockville, MD: Woodbine House. (Telephone: 1-800-843-732.)

Kelker, K.A., & Holt, R. (2000). Family guide to assistive technology. Cambridge, MA: Brookline Books. (Telephone: 800.666.2665. Web: www.brooklinebooks.com)

Metzger, L. (1993). Barry’s Sister. New York: Puffin. (A book for children ages 10 and up. The story line is about a child with cerebral palsy and his sister.) (Telephone: 1-800-253-6476.)

Miller, F., & Bachrach, S.J. (1998). Cerebral palsy: A complete guide for caregiving. Baltimore, MD: Johns Hopkins University Press. (Telephone: 800.537.5487. Web: www.press.jhu.edu)

Weiss, S. (1993). Each of Us Remembers: Parents of Children with Cerebral Palsy Answer Your Questions. Washington, DC: United Cerebral Palsy Associations, Inc. (See address and telephone number below.)

 

Sources:

Office of Communications and Public Liaison
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892

http://www.nichcy.org/Disabilities/Specific/Pages/CerebralPalsy.aspx

 

 

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