Cerebral Palsy Organization

Epilepsy Foundation
4351 Garden City Drive
Suite 500
Landover, MD 20785-7223
Tel: 301-459-3700 800-EFA-1000 (332-1000)
Fax: 301-577-2684


March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203


Easter Seals
230 West Monroe Street
Suite 1800
Chicago, IL 60606-4802
Tel: 312-726-6200 800-221-6827
Fax: 312-726-1494


United Cerebral Palsy (UCP)
1600 L Street, NW
Suite 700
Washington, DC 20036
Tel: 202-776-0406 800-USA-5UCP (872-5827)
Fax: 202-776-0414


Children’s Neurobiological Solutions (CNS) Foundation
1726 Franceschi Road
Santa Barbara, CA 93103
Tel: 866-CNS-5580 (267-5580) 805-965-8838


Children’s Hemiplegia and Stroke Assocn. (CHASA)
4101 West Green Oaks Blvd., Ste. 305
PMB 149
Arlington, TX 76016
Tel: 817-492-4325


Independent Living Research Utilization Project (ILRU) The Institute for Rehabilitation and Research
2323 South Sheppard, Suite 1000
Houston, TX 77019
(713) 520-0232; (713) 520-5136 (TT)
Web address:


National Rehabilitation Information Center (NARIC)
8455 Colesville Road
Suite 935
Silver Spring, MD 20910-3319
(301) 588-9284 (TT/Voice); (800) 346-2742
Web address:


Cerebral Palsy: Hope Through Research: Cerebral palsy information booklet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).

NINDS Spasticity Information Page: Spasticity information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.

Classification and Definition of Disorders causing Hypertonia in Childhood: Consensus report of a meeting on hypertonia in childhood, April 22-24, 2001.

NICHCY State Resources Sheets list organizations in the state addressing cerebral palsy, assistive technology, and other disability-related issues and concerns.



Geralis, E. (1991). Children with Cerebral Palsy, A Parent’s Guide. Rockville, MD: Woodbine House. (Telephone: 1-800-843-732.)

Kelker, K.A., & Holt, R. (2000). Family guide to assistive technology. Cambridge, MA: Brookline Books. (Telephone: 800.666.2665. Web:

Metzger, L. (1993). Barry’s Sister. New York: Puffin. (A book for children ages 10 and up. The story line is about a child with cerebral palsy and his sister.) (Telephone: 1-800-253-6476.)

Miller, F., & Bachrach, S.J. (1998). Cerebral palsy: A complete guide for caregiving. Baltimore, MD: Johns Hopkins University Press. (Telephone: 800.537.5487. Web:

Weiss, S. (1993). Each of Us Remembers: Parents of Children with Cerebral Palsy Answer Your Questions. Washington, DC: United Cerebral Palsy Associations, Inc. (See address and telephone number below.)



Office of Communications and Public Liaison
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892